Trusting big health data
It’s here – big data. Not only that, big health data. Most of us are aware (or should be made aware) that data about us
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data sharing
‘MARRVEL’: a new way to compile big data in a human-centric way
When a group of researchers in the Undiagnosed Disease Network at Baylor College of Medicine realized they were spending days combing through databases searching for
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Changing genetic privacy rules may adversely affect research participation
Do you know your genetic information? Maybe you’ve taken a “23andMe” test because you were curious about your ancestry or health. Maybe it was part
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Trade secrets and health data access: How policy plays a role
A “quiet revolution” in medicine is underway that involves tailoring care to each patient’s unique genetic and health profile. To be successful, that revolution depends
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Collaboration matters when looking for answers to undiagnosed diseases
It used to be that identifying genes involved in a particular disease was like finding a needle in a haystack. Nowadays, scientists still have to
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Examining public resistance to global genomic data sharing
Maybe you emigrated from another country or have family members who did so; or perhaps you were inspired by a visit to the United Nations
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Making the case for global genomic data sharing
The scientific community may be overlooking a significant barrier to international collaboration reflected in a series of recent surveys: potential public resistance to sharing of
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