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data sharing

Changing genetic privacy rules may adversely affect research participation

May 26, 2017June 6, 2017 Leah 0 Comments BabySeq, Center for Medical Ethics and Health Policy, data sharing, Genetic Privacy, Hayley Peoples, health policy, Health Privacy, Research Policy

Do you know your genetic information? Maybe you’ve taken a “23andMe” test because you were curious about your ancestry or

Trade secrets and health data access: How policy plays a role

May 19, 2017May 19, 2017 Leah 0 Comments Center for Medical Ethics and Health Policy, Christi Guerrini, data sharing, Defend Trade Secrets Act, Genetics, Health Law, HIPAA, law, Patent Law, Trade Secret

A “quiet revolution” in medicine is underway that involves tailoring care to each patient’s unique genetic and health profile. To

Examining public resistance to global genomic data sharing

February 1, 2017February 1, 2017 Leah 1 Comment Center for Medical Ethics and Health Policy, data sharing, genome, Global Health, globalization, Mary Anderlik Majumder, public opinion

Maybe you emigrated from another country or have family members who did so; or perhaps you were inspired by a

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