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Privacy

Policywise

Health apps and at-home genetic tests: Can a law fix the bugs?

July 12, 2019July 30, 2019 Clarice 0 Comments Center for Medical Ethics and Health Policy, genetic test, Mary Anderlik Majumder, Privacy

Have you ever used a gadget or app that tracks your steps, blood pressure or pregnancy? Have you ordered a direct-to-consumer genetic test? Or have

Policywise

Stuck in the middle: Examining ‘Xennial’ privacy preferences

October 13, 2017October 13, 2017 Clarice 0 Comments Generation X, Generations, Genetic Privacy, Health Privacy, Millennial, Privacy, Security, Stacey Pereira, Xennial

“Hey 30-somethings, you’re a Xennial,” and “Are you a Xennial? Take the quiz,” appeared in my Facebook feed last June. The headlines, articles, and viral

Policywise

H.R. 1313 and the future of genetic privacy

March 17, 2017March 16, 2017 Clarice 3 Comments ACA, ADA, Center for Medical Ethics and Health Policy, Congress, Genes, Genetic Privacy, GINA, health policy, Jessica Roberts, law, Privacy

In the 1997 film Gattaca, the protagonist is unable to pursue his dream job because of his “sub-optimal” genetic makeup. In 2008, the U.S. Congress

From the Labs features a visualization of a novel approach to study gene function in the fruit fly. Image courtesy of the study authors/Cell Reports, 2021.